Emily’s Smiles through Difficult Trials

Eddie is here and Emily seems to be doing better today.  She has finally got up to play with her Thomas the Train table.

Emily still is running fevers especially at night, it increases.  Doctors say she is ok to stay at the apt.  if it doesn’t  increase any higher than 101.3  and the vomiting is only occasionally.  They still are checking her cultures .  She remains weak  and doesn’t want to move off the sofa or bed .  She is having bad pains in her stomach and had 3  long nights being  sick on her stomach, all night no sleep,  and could’nt even get up to go to the potty.  After her vomiting was finished  she would sing me a little song,  how she does all this and still stays happy.   Doctors are saying it may be a GI virus. I page  them and keep them informed on what they want me to do next.  It is taking her a long time to get over.  I pray she will have the strength for the next chemo treatment on Wednesday.  She has not had anything to eat for 10 days,  I continue to give her TPN  and Lipids  nightly  over 12 hours.  She  does not want us to eat around her, she cannot take the smell of the food.  I see the Dr. on Tues.  if anything doesn’t happen before then.  I will keep you informed.  I am so glad Trey was able to be home for a few days before school starts, so he could play with everyone.   Eddie said they have had a good time. 

Love,  Dawn