Emily is now sleeping. We had another breakout of hives tonight and know its the Vancomycin, and not the Zofran. Vancomycin is every 8 hours along with Rifamphin 2 times a day (think that’s the right way to say that). Its a strong antibiotic that increases the antibiotic Vancomycin’s ability to attack this type of Staph. Emily has been taking Benedryl for pre-med throughout the day and afternoon , and she still broke out in hives. She was maxed on Benedryl already for pre- meds, so we tried to give her 12 MLS of Aterax by mouth but it was so thick and way to much for her to try to hold down, and of course it didn’t, but she tried so hard. We had 8 MLS (syringe) down, but that is a far as it got. She did hold down the tylenol!! Its hard on the nurses when orders have to be written for meds to be given through her lines, and they’re not alreadywritten, It Takes so long to get them from pharmacy, and you try to do what will work fast, especially when they are reacting to a med. It really gets our BP up when we have to see her do these unnecessary large dosages that cause all that deep vomiting especially when she has to have all these platelets to keep the area in the brain from bleeding. All that heavy vomiting is not a good situation plus orders for Zofran were stopped early because they thought this may be causing the hives, and nothing was written in its place, and she has not been on any nausea med today other than benedryl (which was for pre-med precautions), not her regular nausea med., we did not know this. She said “Well mommy at least I held down the tylenol”. She just tries so hard. But on a great note, this afternoon (Thursday) Emily made progress, Colored in her big Scooby Coloring book, and was more alert. We are just sooooooo amazed by her determination and strength! The CT scan showed only small amont of blood in the ventricles. Platelet count looks good as of today. OK, GOD IS SO GOOD! He was right by Emily’s side the whole time. A neurosurgeon, just came in to check on her surgery sites, was able to ask if there could be any problems with all the vomiting, and he said her platelet counts are fine, and that tubing they placed in surgery will drain any pressure buildup. God just sent the answers needed to be able to get some sleep . Good thing God never sleeps! He knew we were so worried, He sent the neurosurgeon, in at 2:30 am , so questions could be asked. We are so greatful He loves us so much.
Dawn & Eddie
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