I don’t where to start. The last 2 days, Emily has still been fighting the fevers. Vomiting alot and is on 3 different nausea meds. Drs. have put her on 3 antibiotics and the fever is only coming down for a little while when tylenol is given. The cultures form the ER is positve for strep in her lines, but they are doing a series of cultures because the fevers are not reacting to the antibiotics. Not sure if there are other types of infection, viral or both. She had a chest xray earlier and it looks fine. We just came back from doing a CT, because she is having headaches and vomiting regularly. I Pray it is not the ventricles in the brain building pressure, since the shunt was removed. Dr said it could be because of the high fever. Emily feels very very bad. She had another blood transfusion and platelets today. She had her nose suctioned to rule out something. else. Sleep is limited. It is so busy in the room and Emily has to be soaked often in Povidone Iodine, oh she really likes that. Physical Therapist came by this morning to check Emily’s legs and feet. She has limited motion in both and can hardly flex feet and legs without pain. We are making plans on what to do when Emily recovers from this stay. It can be the chemo treatment but it is also due to the very limited movement she said. I have another Physical Therapist that will be coming to the Apartment as soon as we are back, to evaluate again. Sometimes you have to go out on your own to find out info. I am checking on Insurance also to see not only about now, but I want to know what can happen after treatment, because she is going to need Occupational Therapy, which we started some during radiation, but she doesn’t have any good days for that now. Physical Therapy plus speech has to be worked in there sometime. I did inquire about Pitt Memorial in Greenville, which is an inpatient hospital. for rehab patients. They say a patient on a schedule there needs 5 days a week 2x a day for each therapy treatment, more intensive therapy. The physical therapy that is done here in the hospital is the type, to get patients ready to be discharged, not the type of intensive therapy needed to help a patient long-term. I am going to see if I can find out more info with my insurance company and what they may or may not pay. Or they may not tell me any info without a Drs. order. Eddie is on his way and will be here around 9:30 pm. I will let you know more when we find out about the tests. Thank You to everyone for your much needed prayers.
Love, Emily and Dawn
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