Surprise!!! Back @ Apt!!!!!!!!!!
What a surprise for us today (Friday)! Emily’s blood pressure became stable over night, no fever, no vomiting, meds are working good. No headaches for the last 2 days. Dr. G. came by mid-morning and said ”Emily do you want to go home (apt.)” ”yes, yes, but I have to finish my picture first”. Then Mrs. Trish came in, time for school. Eddie and I packed and took a trip to the van, while Emily did reading. Dr. Plage stopped by to visit, and now Emily can’t stop talking about the surprise closet. She wants to visit and go through all the treats. I told her that Sandy has 15 different rolls of stickers!! The CT room and MRI rooms don’t even come close to the amount of stickers Sandy has. You can imagine she has aquired quite a collection. The nurses are so good to her in the ‘donut machine’, as Emily calls it. She thinks its cool to ride down the halls with her bed on wheels. OH yes, Mommy even has to ride on certain clingy days, we hide under the covers. We were back to the Apt. around 3:00pm. A home health nurse came by around 6:00pm, because if we wanted out, mommy had to learn about even more meds, pre-meds, and antibiotics to administer on more connections, along with the others, we were already giving. I am learning at 12:30 am with a list to go, if this was a thought out plan. Dr. G. feels Emily needs a different environment, if possible. I will do what it takes to be able to go back to the apt. She needs some catch up before we are back for tests that are done for pre admission for cycle 4. Emily will be receiving physical therapy 3x a week at the apt. unless we are at the hospital. Speech therapy will be done, don’t know schedule at this time, and working on a way to receive occupational therapy, at the apt. Lisa,her physical therapist at the hospital will be able to do 2 of the treatments each week, and a friend she knows well, will be seeing her the other day. Lisa works at the hospital and also works part-time with homebound patients, so Emily is excited about Ms. Lisa visiting her at the apt. We will be back Monday to the hospital for blood work and Drs. evaluation, probably blood products too. Mrs. Trish usually teaches during the waiting time . Emily has been sleeping most of the afternoon, and still is weak. We pray this week Emily will be infection free. We thank everyone for the daily prayers for Emily. What a blessing we received with the news this morning. Emily is sleeping in her big cozy bed tonight.
Love, Eddie, Dawn, Trey, Emily
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