Heard things are in full swing at home for the Day in the Park. Wanted to send a little news for this week so far. Monday, most of the day was spent at clinic with labs, school then a short break but returned for the afternoon trying to dissolve a clot in one of her pheresis catheters. Her line started clotting on Sunday night and had to stop and give all her fluids through the other line and hoped that was going to work. I finally found some of the tubing that I had to have to hook both fluid bags to one line. No luck on Monday, line still clotted. Returned today and spent time trying to dissolve the clot again, returned late this afternoon and still cannot make it work. Wednesday Emily has a appointment with her Radiation Dr. which is the first appointment since the end of October. After that she has school lessons and back to check on her line. Emily said “Mommy, I am going home even if one line is not working!” We will do what we have to do, to go home this weekend! We can’t slow down now, we have come too far! We will have Occ. Therapy and Physical Therapy this week. She said she wants to go to school and dance class. She has high hopes this week. She always is pushing herself to the max. Speaking of Max it’s been 6 1/2 months since she has had Max’s pizza and that is on her to do list and The Smokehouse for breakfast. She thinks about eating and wants to, but her body still can’t adjust to it without feeling sick. She is trying to eat to get rid of those lines. At least now I don’t have to cook outside on the porch, or eat in the back room. Emily doesn’t get sick when she smells food like she used to. I am trying to ge her to rest up some, but this week has been busy. She said she is going to play and play when she gets home. We will be on our way Thursday after clinic appointments, school, and after therapy. See You Soon!!!!!!
Love, Dawn and Emily
