Almost Done w/this treatment!
Just a quick note to let everyone know that Miss Emily is doing well with this 2nd round of chemo. She continues to be tired and a little nauseaos but as always, keeps on smiling and chatting!!! 
That’s our Emily! Her last treatment for this round should be today and no treatment on Wednesday. Thursday she is scheduled for an MRI, labs and Doctor evaluations to see what progress has been accomplished with these 2 rounds of treatments. Keep praying that this chemo has suppressed the cancer and helped shrink the tumor. Remember the BLUE BUTTERFLIES………Hope & Healing!!!
Rumors are circulating about Emily being sent to an out of state hospital. 
At this time, that is not on schedule. It has been suggested, but for now she remains here! The term they use for Emily is “neoplastic meningitis” (Cancer that has spread to the lining of the brain and/or spinal cord). The last MRI was showing spreading to the spinal cord. The research study is to test an investigational drug called “Topotecan” in hopes of finding a new treatment that will fight the tumor. It is not approved by the FDA for treating neoplastic meningitis. Topotecan has been shown to have anti-tumor activity against a wide variety of cancers when used intravenously (in the vein). Emily’s is A Phase 1 Pharmacokinetic Optimal Dosing Study of Intrathecal Topotecan for Children with Neoplastic Meningitis, ( in the cerebrospinal fluid).
ALWAYS REMEMBER, No News, is Good News! We haven’t had daily updates because there has not been much to report except that she continues with her daily clinic routines with treatments. In between she spends her time coloring, drawing, reading, crafting, watching movies and therapies. She is doing well! And, I’ve been teasing her that her beautiful blonde hair appears to want to come back “black” like her Mommy! They plan to be “homie home” on Friday 6/29, and ready to enjoy a wonderful week at the beach for the July 4th week. 
Time to enjoy each other, family and “little friends”. Emily can hardly wait!!!
Love, Stephanie
“HOPE is FAITH holding out its hand in the dark”
