Afternoon update!
We are back at the apt. Long day for Emily. Another set of Xrays during the dye imaging to detect the clot, she has had so much radiation it scares me to think how much total within this past year. She had a CT and chest Xrays when she was in the ER on Sunday, to rule out infection in other areas, before Neuro would draw from her ommaya reservoir to check for infection in the spinal fluid. We are so thankful the reservoir was not infected. This morning we saw Dr. G and his PA for exam and consultation. The nurse injected TPA into the line and left it in the line for three hours. Then tried to get a blood return and no luck so we went to radiology for the dye and Xrays. A small clot in the line. As we were down in radiology removing the heparin from her line we started to get a blood return. Yeah!!! 
Then back up to the 4th floor for cultures and antibiotics. We were happy to know we can stay at the apt. and treat the infection with antibiotics. She is still running a fever but low grade. We are close to the Hospital so I can have her there quickly. We will go to the childrens clinic daily for evaluation and cultures until 4 days of negative results. We hope to be Home Sunday afternoon after the appointment.
We had a call from the Camp Debbie Lou and we can go the next week. Yeah!!!! A family canceled due to the child’s Make a Wish trip being ready. Emily is so excited, and this makes up for this week not being Homie Home. As the camp director said “it is meant for Emily to be here“.
Eddie and I did not mind if we had to stay in the ER for another 12 hours as long has Emily’s reservoir did not have to be removed. Prayers were answered once again! 
Emily will start another week of treatment on Monday 7-30-07 after the trip, then 1 week off and 1 week of tests. MRI, Labs, Lumbar Puncture, Ommaya tests, Dr. appointments. Then Maintenance Week– Week of treatment once a month with another MRI on 11/12/07 Have not heard about the oral chemo at this time.
Trey is excited, 
Paw Paw said he is ready for football camp, this week. I told him just make sure you wear your mouth piece!!!!!! , catch the ball, and run run run so you won’t be tackled and I won’t worry so much. Thank You for all the prayers and thinking of us. Thanks for helping and caring for Trey.
Love, Emily and Dawn
